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Paul

  • Post-Surgery, Again

    Be warned, I’ve written a book this evening. If you like text, feel free to plow on ahead. Hey, everybody. After being away from the computer for a couple days (but it feels much longer!), I have lotsa news of both my girls. First, Jessica is back home, after being in surgery yesterday and spending…

  • Extubation Today

    The last time I updated, I told you all how the doctors thought that Namine’s left diaphragm might be paralyzed. Well, they did a flouroscopy scan, which revealed that it is, in fact, paralyzed. To clarify, it’s not actually paralyzed, but it moves in the opposite direction. The doctors would actually prefer it not move…

  • New Week, New Worries

    So I’m back from visiting Namine. I have good news and bad news. The good news is that she’s doing really well. Her numbers all look really good. Her breast milk is still being fortified with soy-based formula, and she’s been off the lipids since around noon yesterday. She’s also doing most of the breathing…

  • Extubation Tomorrow

    Hello again from Hospital Land!Bored? Highlight the page!Namine’s breathing tube was scheduled to be removed today (a process called extubation). Of course the doctors want her alert for this process, since its purpose is to see if she is able to breathe on her own. Toward this end, Namine was supposed to be cut off…

  • Post-Surgery

    I’m writing today’s journal entry longhand in Namine’s new room in the PICU (and typing it out much later). She’s all situated here, and the nurse tells me that the doctors are very pleased with her progress, such as it is – so soon after her surgery. Namine still has lines in her belly button,…

  • Surgery Done, Recovery Begun

    Namine completed her first heart surgery, a modified Norwood.

  • Here We Go Again

    Well, tomorrow’s the big day. Jess and I will be out of touch – online, at least – until after the surgery. See you on the other side.

  • Surgery Moved to Tuesday

    I wrote on Wednesday that Namine’s heart surgery is rescheduled for this Monday; well, that changed today. The doctors moved it to Tuesday. So on Monday, they’ll still do the fiber optic scope to look at her throat (and how it’s healed). If she’s healed to their satisfaction, they’ll proceed with the heart surgery on…

  • Videos Moved

    I’ve moved all of Namine’s videos to their very own channel (as opposed to grouping them by keyword in a larger channel). It may take a while for the changes to get updated on the blog, so you can check them out here in the meantime.

  • No Surgery Today: Addendum

    We found out later today that the doctors do not believe Namine’s throat is infected. I edited the previous post, but in case anyone is subscribing to the blog’s feed, I wanted to make sure you received the update. The other thing I want to mention before going to bed is that her heart rate…

  • No Surgery Today

    I have some good news and some bad news.

  • Quick Update, and a Video

    Hello all. I’ve uploaded several videos to Youtube, and they should show up in the now-live video sidebar. I also want to draw your attention to one in particular, because Namine really opened her eyes for us last night. I promised myself I wouldn’t make any cooing noises at her, but you can see how…