·  Normal is a dryer setting.

Paul

Not Home Yet

First off, my apologies. We’ve been a little lacking in updates, I know. We’ve been a little busy. Wednesday has come and gone, and Namine is not yet home. Monday night, Namine was not doing too well – she was throwing up frequently, and so the doctors were not comfortable sending her home the next…

Forth to the fourth

Hey everybody. Namine has been moved up to the 4th floor. This seemed like a pretty sudden thing, since Jessica got to the PICU room yesterday and they said, “hey, we’re moving her upstairs!” But actually, the doctors tell us that recovery time after the glen procedure is a lot shorter than it was after…

Almost all tubes out. Also, pink!

So Namine’s trach was put back in, making her a much happier baby. Her chest drainage tubes were also removed; her left and right arterial lines were removed, but the one in her arm is still in. They also made sure that her new G-tube is in correctly before they start feeding her. They may…

Post Tube Addition

After they put an additional drainage tube in, Namine’s stats improved significantly. Her temperature is a little high, but that may just be an effect of having surgery (especially heart surgery). She was still quite sleepy while we were visiting her, although she did open her eyes a few times, only to decide we weren’t…

Another Chest Tube

This morning the hospital called us. Namine ‘s chest was draining some more fluid, so they decided to put another tube in to control the drainage. Other than that, she’s doing fine.

Surgery Tuesday

Well, change of plans. Again. The doctors tell us that – for sure, now – Namine will be going for her heart surgery this Tuesday at 7:30 am. Jessica and I are none too happy about all the changes and about-faces that the hospital has done with Namine, but it looks like things are finally…

No Surgery Thursday

I went to the hospital today after work, and asked to talk to the cardiology department. (Let me catch you up here, in case you don’t know.) They had said originally that Namine’s heart surgery needed to be as soon as possible, and they wanted to do it last Friday. But her heart surgeon was…

Getting better

Hello all. Namine is still in the PICU, but she’s getting better. She’s smiley again today – a big change for the better! They’re weening her off the vent, so hopefully we’ll be able to come home soon. The emptiness of home without her is too much. It hurts, missing her. night and daythere’s a…

I wrote you all a book

Okay, kids. It’s been a little while, but I think it’s time for an update. You know by now that Namine is home. Actually, she’s been home for a week and a day, and her mom and I are exhausted. Happy, but tired none the less. On Friday (I think. The days blur together) we…