·  Normal is a dryer setting.

March 2014

What a day

It has been an interesting couple of days. I am happy to say, though, that Namine does not have appendicitis and we are home safe and sound. Jessica and Namine are both fast asleep now.

Ignoring the observer effect

As you may or may not recall, Namine recently had a sleep study at the hospital last week. The techs stuck wires and glue in her hair and told her to go to sleep, with the hope that this would be a decent indication of how she sleeps at home. And I can’t help but…

Dermatology appointment

It’s always a bit frustrating for us when we have to deal with doctors who feel they know Namine better than we do. Imagine how maddening it is, then, when we meet a doctor for the first time and she is convinced that we are doing everything wrong.

Sleep study

Namine had a sleep study last night to observe her restlessness. The goal, of course, is to get her to stop rolling around as much, so that she gets better rest at night. But like Heisenberg, we know that putting leads and monitors on Namine interferes with normal sleep; as a result, she only slept…

Dinner plans

“Namine, what do you want for dinner?”

“We should have bacon and celery.”

The girl knows what she wants, I’ll give her that.

Literally 8,000 times faster

I didn’t get to accompany Jessica and Namine to therapy today, but my sister did. Namine walked on the treadmill only because she had therapy with Lesley, and she walked across the mat “eight thousand times faster.” That may or may not be an exaggeration.

Building strength

Namine’s two physical therapists push her hard, but it’s a rare occasion when she complains that they’re not being fair. And this is not one of those times.

Speaking a new way

On Thursday I took Namine to the speech pathologist at Children’s. He wanted to see and hear Namine speak with the prosthetic and without it. I had not put the prosthetic in because it makes Namine throw up. So we went without it, I still had it in my purse. Namine did her talking into…

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