Despite the fear

Since Namine’s chest incision from her heart surgery is taking longer to close than originally anticipated, she had to keep it covered with gauze and some tape over the weekend. She was none too happy about it, either, especially because her skin is very sensitive to adhesives.

Open letter to Rise Against

Tim McIlrath and Neil Hennessy,

I want to thank you for the song “Swing Life Away.” It has been an anthem of sorts for both me and my daughter, Namine. She was born with several birth defects, some so severe that doctors informed us, prior to her birth, that she would probably not survive long enough to go home.

You can’t win them all

You can encourage kids to play together, but you can’t make them get along. Not everyone is willing to learn, to compromise, to share; not everyone is open to the idea that different is not bad.

Blood on the sheets

Every morning, before I leave for work, I move Namine from her bed to “the big bed” (her name for Jessica’s and my bed). This morning, as I picked her up, I noticed two things: blood on both her bed sheet and her nightgown.