Remember those blood draws? Well, Namine had another one today, again to check her INR. They dropped her coumadin dose since last time, so here we are again.
I came across a tutorial online that caught my eye. It wasn’t the tutorial itself that I liked, though; it was the image they used in the header.
Since Namine’s chest incision from her heart surgery is taking longer to close than originally anticipated, she had to keep it covered with gauze and some tape over the weekend. She was none too happy about it, either, especially because her skin is very sensitive to adhesives.
Tim McIlrath and Neil Hennessy,
I want to thank you for the song “Swing Life Away.” It has been an anthem of sorts for both me and my daughter, Namine. She was born with several birth defects, some so severe that doctors informed us, prior to her birth, that she would probably not survive long enough to go home.
You can encourage kids to play together, but you can’t make them get along. Not everyone is willing to learn, to compromise, to share; not everyone is open to the idea that different is not bad.
As you can see, Namine was super cheerful today. She knew what was in store – an x-ray, a blood draw, and then on to see the cardiologist – but nothing could sour her mood. No, not even the blood draw.
Every morning, before I leave for work, I move Namine from her bed to “the big bed” (her name for Jessica’s and my bed). This morning, as I picked her up, I noticed two things: blood on both her bed sheet and her nightgown.