Tim McIlrath and Neil Hennessy,
I want to thank you for the song “Swing Life Away.” It has been an anthem of sorts for both me and my daughter, Namine. She was born with several birth defects, some so severe that doctors informed us, prior to her birth, that she would probably not survive long enough to go home.
You can encourage kids to play together, but you can’t make them get along. Not everyone is willing to learn, to compromise, to share; not everyone is open to the idea that different is not bad.
As you can see, Namine was super cheerful today. She knew what was in store – an x-ray, a blood draw, and then on to see the cardiologist – but nothing could sour her mood. No, not even the blood draw.
Every morning, before I leave for work, I move Namine from her bed to “the big bed” (her name for Jessica’s and my bed). This morning, as I picked her up, I noticed two things: blood on both her bed sheet and her nightgown.
I had an idea to create an animation of an envelope opening, and a piece of paper being removed and unfolded. This is the result.
“I got it, Daddy. I’ll put it here, right next to my heart.”
Remember Namine’s hematoma on her chest from last night? Today Jessica took Namine to the hospital to get it checked out.
A couple videos of Namine singing. Love the false start on the second one. <3
Last night, when I was getting Namine ready for bed, I noticed something: the scab over the incision on her chest was half gone. What’s more, she had a nickel-sized bruise. It hadn’t been there that morning, of that I was sure. We immediately got on the phone with the hospital’s special needs and cardiology departments.
Don’t they look good? I donut know which one I liked best. (And I don’t apologize for the bad pun.) We won a little donut maker at the KidReach picnic, and yesterday Jessica and Namine made some.