Snow for Jesus
Today was quite a busy day. I only had a half day of work, which actually went by rather quickly. (It’s a rare thing when I get to just work on front-end code, so that was awesome.) Jessica and her sister Chyral, with Namine in tow, picked me up from work. From there, we went…
Negative results are positively good
Today was Jessica’s follow-up oncology appointment. We got the results of her bone marrow biopsy, which, for the most part, are favorable.
Cleft palate clinic
I can never remember if I’m supposed to refer to Dr. Denny’s team as the “cleft palate team” or just the “palate team.” I imagine it’s the latter, since the good doctor does all sorts or palate work. But since Namine had a cleft palate, that term just sort of stuck with us. At any…
A night of cookies and meat
We had a nice night – “we” being Jessica, myself, Namine, Auntie Chyral (who can once again go by her real name now that Namine can say it), and our neighbors (Leah, Mike, and their daughter Alyssa). When Chyral and I arrived at my apartment this evening after work, the cookie-making session was already in…
On Friday Jessica had a bone marrow biopsy. Let me back up a bit. Her platelets have been low for some time – for several years, if the doctor is correct. This had never come to our attention; so Jessica had to have a blood test done. Its results were inconclusive, thus the biopsy.
Namine and I have a nightly routine. I give her a bath and she gets to play for a while (just how long depends on how early she gets in) – sometimes she wants me to play with her, sometimes not – she takes her medicine, we pray with Jessica, and she goes potty. Then…
Nobody told her she’s disabled
When I got home from work the other day, Jessica showed me a picture on her phone of Namine sitting on the chair in front of the desk.
Things fall apart
I follow a wide range of people on Twitter – special needs parents and experts, individual programmers, as well as companies. I also follow a few joke accounts. A couple days ago, a tweet by @soveryawkward struck me to my core.
Sometimes Namine gives us reason to believe she’s colorbind. It’s hard to tell, though, because sometimes she likes to goof around and tell us the wrong color of things, just to be silly.