·  Normal is a dryer setting.

3 Comments

  • Barb Dittrich
    at · Reply

    Paul, are you familiar with The Center for Bioethics & Culture? http://www.cbc-network.org/ This has been a huge issue in the wider disability community for quite some time because euthanasia creates a slippery slope as far as defining who should live and who should die. I urge you to check it out. We’re in the same position with our son’s hemophilia.

  • Barbara
    at · Reply

    Barb is correct on how wide and important this issue is. I read several other blogs that touch on the ‘slippery slope’ topic and put-out tweets like the one that got your attention to highlight the issue. So many parents are pressured before birth to make those decisions – representing as it was to you – a terrible life for the child and for the parents. Yet over and over again parents are declaring the joy of raising their child with a devastating diagnosis. This is not just a problem near birth. If medical care is controlled by others, or we give our medical care decisions over to others by buying into certain ‘programs’, what happens when the care we want is denied? I’ve posted many times on the meaning of ‘healthcare insurance’ – mostly 2 years ago. Read through my archives for more, if you are interested.

    Meantime, thanks for blogging about your Namine!

  • Barbara
    at · Reply

    I guess I should explain – Paul even asked last evening if I was promoting what was mentioned in the tweet – NO. @supercatcalhoun was tweeting from a bioethics conference and I was retweeting some of her tweets – to spread the word of concern. She was also tweeting warning. If you are on twitter, consider reading her whole series of tweets from yesterday.

  • Leave a Reply to Barbara Cancel reply

    This site uses Akismet to reduce spam. Learn how your comment data is processed.

    Back to top