We got a call this morning from Children’s Hospital. Due to the weather, Namine’s orthopedic surgeon, Dr. Thometz, would not be in today. As a result, her surgery is canceled. They will reschedule sometime early next week.

This is the last straw. We have had to deal with so much crap from ortho, it’s not even funny. You might argue that this isn’t the doctor’s fault but rather the weather’s, but the only reason Namine was even having this surgery today is because we had the Special Needs doctor keep telling the ortho doctor that Namine needed this before decannulation. Ridiculous.

We’re still at Children’s Hospital because Namine wasn’t just having her foot surgery today. She was also going to get her bronchoscopy today, the first step of two toward decannulation. If the bronch goes well, she’ll have her sleep study in September. So the day isn’t a total loss. And while it’s good that we don’t have to spend the weekend in the hospital – the bronchoscopy is an outpatient procedure – it’s frustrating to have to wait even longer for something that probably should have been done a year ago.

I think it’s time to give Shriners a call.


  1. Oh no! What the heck does the WEATHER have to do with the doctor coming to work today? It’s a shame that Namine couldn’t have had the two procedures done at once, and save her the discomfort and anxiety of an ADDITIONAL hospital experience. Yes, I don’t blame you one bit for wanting to call Shriners Hospital and have doctors who actually CARE about their patients do the surgery, instead of some NIMROD who would CANCEL a little girl’s surgery due to RAIN. Was he planning on operating in the PARKING LOT? Aaaarrrrrgggghhhhh! I’m sorry for the additional stress on all of you. It’s a darn shame!

  2. I checked, and only TWO flights from Toronto to Milwaukee were cancelled in the past 24 hours. All other flights departed on time, and DOZENS of flights to Chicago departed as scheduled. That doc deserves to be reported to the medical ethics board.

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