Jaw Distraction

Hello to Everyone, Paul and I brought Namine in to see Dr. Denni this past Monday to find out when she will be able to have her jaw distraction done, so we can remove the trac and g-tube. It was mostly bad news but some good news. We have to ween her faster off of […]

Hospital

Hello Everyone, I just wanted to quickly update everyone.  We had to bring Namine in on Sunday to the Hospital.  She was having crazy heart rates.  They still don’t know what was causing it and they sent us home today.  If I get a video of her laughing and talking then I will have Paul […]

Craziness

Well it has been a crazy weekend and a crazy week ahead. Namine doesn’t have any appointments this week, but starting next Friday I think we have one every day for the next couple of weeks. I will try and take a whole bunch of pictures and put them up for everyone. I shouldn’t say […]

YAY for equipment changes.

Man oh man. If everyone were trained to make changes that would be exciting for us. We had a couple of doctors visits this past week and they made some vent changes. The first changes I could do myself, but the other changes neither Paul or myself could change so we have to wait for […]