Book club

Yesterday evening Namine joined in an online book reading. Four children, herself included, read from books of their own choice.


Easter bulletin board

It’s been more than a week now since Easter Sunday, and I still haven’t posted about our bulletin board. That’s kind of fitting, since we didn’t even get the board up until the night before Easter.


Reacting to negativity

A question was asked on the Pierre Robin Sequence board:

As a parent to a special needs child, do you get offended when people ask “whats wrong” when they see a trach or something out of the norm with your child? how do you react to the question?