Today was Namine’s field trip. We were excited and we had a great time, but the day got off to a bad start.
Yesterday evening Namine joined in an online book reading. Four children, herself included, read from books of their own choice.
Namine is definitely getting better, but she’s still not 100% yet. So I made her some chicken noodle soup.
Yesterday afternoon, Namine had an appointment with the Special Needs department head.
We went back to Urgent Care last night. Namine’s cough had changed, and we were concerned that something might have traveled to her lungs.
It’s been more than a week now since Easter Sunday, and I still haven’t posted about our bulletin board. That’s kind of fitting, since we didn’t even get the board up until the night before Easter.
Things often don’t go as planned. This weekend was one of those things.
Jessica is the master chef, and I’m like the plongeur or something. But she was sick, so I threw something together for Namine and myself.
On Sunday Namine and I went down to Jessica’s sister’s house for Easter lunch.
A question was asked on the Pierre Robin Sequence board:
As a parent to a special needs child, do you get offended when people ask “whats wrong” when they see a trach or something out of the norm with your child? how do you react to the question?